Coach to Cure MD – Duchenne Muscular Dystrophy

Published: October 6th, 2015

Category: UAD Student Blog

DMD blog

On Saturday, September 26, 2015 over 11,000 coaches who are a part of the American Football Coaches Association (AFCA) agreed to promote Coach To Cure MD. Football coaches nationwide wore armbands and mentioned Coach To Cure MD during on and off-field interviews. Coach To Cure MD is a partnership between Parent Project Muscular Dystrophy – the biggest national charity focused on Duchenne muscular dystrophy (DMD) – and AFCA coaches and staff; it’s goals are to raise awareness for DMD and to raise money to be put toward research for a cure. DMD is one of nine types of muscular dystrophy and is a progressive muscle disorder affecting one of every 3,500 boys in the United States. Unfortunately, there is currently no cure. The AFCA noticed parallels between the young men with Duchenne and those who play college football and officially made Coach To Cure MD one of their charity efforts in 2008.

Ohio State and Western Michigan played each other on Saturday, the 26th. Both head coaches – Urban Meyer and PJ Fleck – showed their support for the organization by wearing patches in honor of the young men fighting DMD. Jacob Jarvis is a young man who has been an honorary member of Ohio State’s football team for several years, and he got the chance to be at the game Saturday as an honorary captain and to collect a check for $10,000 that Ohio State was able to raise for research towards DMD.

A patient with Duchenne Muscular Dystrophy may exhibit a number of deviant speech characteristics due to the motor unit damage, affecting lower motor neurons. The characteristics often seen with this disease include those typically related to flaccid dysarthria. Hypernasality and nasal emissions result in problems with resonance. The respiratory system is affected creating breathiness and audible inspiration, or stridor. Articulatory errors present as imprecise consonant voicing, due to weakness in the muscles of the face, tongue and other articulators. Currently, the treatment for DMD includes physical therapy, occupational therapy and speech therapy among other drug treatments to slow the disease progression. Speech therapy is recommended to improve articulatory precision, to strengthen the muscles of the face and to strengthen swallowing mechanisms.

In addition to Ohio State University and Western Michigan University, our very own University of Florida is one of over 600 schools participating in the Coach to Cure MD program! High schools and colleges all over the country have come together to raise awareness of this disorder and to raise money for research to find a cure to end DMD once and for all. Let’s all root for our new favorite Ohio State football captain: Jacob Jarvis.

References

Byrnes, D. J. (2015, September 27). Ohio State football writes $10,000 check for Duchenne muscular dystrophy research. Retrieved from https://www.elevenwarriors.com/ohio-state-football/2015/09/60417/photo-ohio-state-football-writes-10000-check-for-duchenne-muscular-dystrophy-research

Duffy, J. (2013). Defining, Understanding, and Categorizing Motor Speech Disorders. In Motor Speech Disorders: Substrates, Differential Diagnosis, and Management (Third ed., pp. 7-9). St. Louis, Missouri: Elsevier Mosby.

Muscular Dystrophy: Hope Through Research. (2015, September 24). Retrieved September 27, 2015, from http://www.ninds.nih.gov/disorders/md/detail_md.htm

Parent Project Muscular Dystrophy. (2015). Coach to Cure MD. Retrieved September 27, 2015, from http://coachtocuremd.org/